“COPD is breathlessness…being really out of breath…it took me ¾ hours to walk 250 yards (228 m)” - Allan Stone, COPD patient
On the 17th of November, EFA, the European Federation of Allergy and Airways Diseases Patients’ Associations, is launching a video to mark World COPD Day 2010. The video highlights issues surrounding COPD for patients, the medical community and policy makers, in an attempt to raise awareness of a disease which affects 44 million people in Europe, and stands to become the third leading cause of death by 2030.
“We need to make COPD known to the public…to the European people - what it is, how to prevent it…how to diagnose it early” EFA President Marianella Salapatas said. EFA believes that a strategic, integrated and comprehensive approach to dealing with COPD is urgently required at both European and national level. The EFA seven point Call To Action highlights how policy makers can act to grant greater political priority to COPD and work to combat it, by encouraging awareness, promoting earlier diagnosis, improving patient care, implementing better air quality regulation and supporting research.
The video presents key information on COPD, patients’ experience of living with the disease, and the launch of the EFA publication ‘Sharing and Caring’ and Call To Action at the European Parliament in June 2010, with the contribution of MEP Catherine Stihler.
As an additional action to mark World COPD Day this year, EFA President Marianella Salapatas will speak on the 19th of November at the European Parliament Representation in Scotland, where officials from the Scottish Government and Parliament, campaigners and local lobby groups will be present.
11/17/2010
5/02/2010
14th EFA Conference: The Case of Re-imbursement and Health Technology Assessment
You are welcome to EFA 14th Conference which will be held in Vilnius, Lithuania, 29th of May. It has been devoted in memory of Mariadelaide Franchi, Honorary Member of EFA. Conference is hosted by Lithuanian Council of Asthma Clubs and Lithuanian Association of Asthma Patient Clubs.
Full title of the conference is Towards equal access to health care all over Europe for and with people with allergy, asthma & COPD The Case of Re-imbursement and Health Technology Assessment
Programme
Venue and accommodation: Hotel Artis, Liejyklos St 11/23, Vilnius
For registration see EFA website
May 28th
9.00-16.00/17.00 EFA Annual General Meeting of Members (separate programme)
May 29th
First session: Reimbursement
Chairpersons: Georg Schäppi, Director aha! Allergy, Skin and Asthma Centre, Switzerland; Francisco Javier Braña Pino, Department of Applied Economics, University of Salamanca, Spain
8.30-9.20 Involvement of patient organizations in reimbursement decisions
Lithuania: Lina Buzermaniene, Lithuanian Council of Asthma Clubs
Portugal: Luís Miguel Vieira de Araújo, Portuguese Asthma Patients Association (APA)
France: Christine Rolland, Asthma and Allergy Association
Bulgaria: Nikoleta Grigorova, Association of Bulgarians with Bronchial Asthma ABBA
Sweden: Per-Åke Wecksell, Swedish Asthma and Allergy Association
9.20-9.40 How is reimbursement of pharmaceutical products achieved?
Manfred Caeser, Expert on market access; Easton Associates, Germany
9.40-10.00 Reimbursement, HTA, and Regulatory Agencies modalities of increased co-operation
Arnold van Halteren, Pharmaceutical Reimbursement Manager of the Dutch Health Insurance Board (CVZ), Amsterdam, The Netherlands
10.00-10.30 Coffee break
Reimbursement practice and development in selected countries and patient involvement
10.30-10.50 Reimbursement practice and development in UK
Jenny Versnel, Executive Director of Research and Policy, Asthma UK, United Kingdom
10.50-11.10 Reimbursement practice and development in Germany
Alric Rüther, Head of Department of Quality in Health Care, Institute For Quality and Efficiency in Health Care (IQWiG), Germany
11.10-11.30 Reimbursement practice and development in Italy
Fabrizio Gianfrate, Professor of Healthcare and pharmaceutical economics, Luiss University and Business School, Rome, Italy
11.30-11.50 Reimbursement practice and development in France
Matthias Brunn, Research Fellow, Paris Health Economics and Health Services Research Unit (URC Eco), University of Paris, France
11.50-12.30 Discussion
12.30-13.15 Lunch
Second session: Involvement of Patients
13.15-13.45 Are people with allergy, asthma and COPD involved in decisions on their treatment and are their associations involved in drug regulatory process?
Jenny Versnel, University of Cambridge, Asthma UK, United Kingdom
13.45-14.00 EFA Book on COPD in Europe
Marianella Salapatas and Susanna Palkonen, EFA
14.00-14.30 Coffee break
Third session: Health Technology Assessment (HTA)
14.30-15.00 Introduction and good practice in involving patients
Susanna Palkonen, EFA
15.00-16.00 Debate with the audience on patient involvement in HTA today and tomorrow
16.00 Conclusions and closing of the Conference
Full title of the conference is Towards equal access to health care all over Europe for and with people with allergy, asthma & COPD The Case of Re-imbursement and Health Technology Assessment
Programme
Venue and accommodation: Hotel Artis, Liejyklos St 11/23, Vilnius
For registration see EFA website
May 28th
9.00-16.00/17.00 EFA Annual General Meeting of Members (separate programme)
May 29th
First session: Reimbursement
Chairpersons: Georg Schäppi, Director aha! Allergy, Skin and Asthma Centre, Switzerland; Francisco Javier Braña Pino, Department of Applied Economics, University of Salamanca, Spain
8.30-9.20 Involvement of patient organizations in reimbursement decisions
Lithuania: Lina Buzermaniene, Lithuanian Council of Asthma Clubs
Portugal: Luís Miguel Vieira de Araújo, Portuguese Asthma Patients Association (APA)
France: Christine Rolland, Asthma and Allergy Association
Bulgaria: Nikoleta Grigorova, Association of Bulgarians with Bronchial Asthma ABBA
Sweden: Per-Åke Wecksell, Swedish Asthma and Allergy Association
9.20-9.40 How is reimbursement of pharmaceutical products achieved?
Manfred Caeser, Expert on market access; Easton Associates, Germany
9.40-10.00 Reimbursement, HTA, and Regulatory Agencies modalities of increased co-operation
Arnold van Halteren, Pharmaceutical Reimbursement Manager of the Dutch Health Insurance Board (CVZ), Amsterdam, The Netherlands
10.00-10.30 Coffee break
Reimbursement practice and development in selected countries and patient involvement
10.30-10.50 Reimbursement practice and development in UK
Jenny Versnel, Executive Director of Research and Policy, Asthma UK, United Kingdom
10.50-11.10 Reimbursement practice and development in Germany
Alric Rüther, Head of Department of Quality in Health Care, Institute For Quality and Efficiency in Health Care (IQWiG), Germany
11.10-11.30 Reimbursement practice and development in Italy
Fabrizio Gianfrate, Professor of Healthcare and pharmaceutical economics, Luiss University and Business School, Rome, Italy
11.30-11.50 Reimbursement practice and development in France
Matthias Brunn, Research Fellow, Paris Health Economics and Health Services Research Unit (URC Eco), University of Paris, France
11.50-12.30 Discussion
12.30-13.15 Lunch
Second session: Involvement of Patients
13.15-13.45 Are people with allergy, asthma and COPD involved in decisions on their treatment and are their associations involved in drug regulatory process?
Jenny Versnel, University of Cambridge, Asthma UK, United Kingdom
13.45-14.00 EFA Book on COPD in Europe
Marianella Salapatas and Susanna Palkonen, EFA
14.00-14.30 Coffee break
Third session: Health Technology Assessment (HTA)
14.30-15.00 Introduction and good practice in involving patients
Susanna Palkonen, EFA
15.00-16.00 Debate with the audience on patient involvement in HTA today and tomorrow
16.00 Conclusions and closing of the Conference
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